Friday, November 9, 2007

Bored and Lazy

Hi all! I'm bored! This is the first day of the week that I haven't had to be at the hospital for some reason or another (none of those being work)... and I'm not sure what to do with myself. Not that this is a huge dilemma, because if I tried to do anything...I'd just get tired and need a nap...but needless to say I feel like I'm wasting time and could be doing something productive!
(I did just get off the phone with my insurance company...as they enjoyed informing me that acupuncture is not covered in my plan...bummer..so I suppose that was productive, as its a question that I've had for weeks.) Anyway, I'm now laying in bed, procrastinating getting up, even though I've been awake for hours. This is partially because I'm scared of any smells that I might encounter throughout my house (I'm currently not nauseous in my room). This is also partially because I know what's waiting for me downstairs....pills and a shot! My avoidance skills are great...until the guilt kicks in....

My 8th treatment is now done. Starting the count-down. Which makes me wonder what my life will be like when this is all over. It's pretty much been my sole focus for 6 months now...what will I be without it? Don't get me wrong... I'm starting to think up a 'Good Riddance' party...it's just that I need this craziness to have some purpose in my life, in order for it to make any sense to me.

But thats all getting ahead of myself...as I have 4 more full treatments left...and the continual side-effects from this last one.

This treatment has been okay. It continues to get more difficult for me to walk into the clinic...we've had to get rather creative to try to trick me. The person who drives and accompanies me to an appointment now drops me off at the front door...so I don't have to deal with parking garage odors. I also have used candles, car air freshners, and other smellies to help with clinic smells. Hospital tape is one of the worst smells for me, so we've started using tegaderm dressings over my port, rather than the tape that comes in the pre-packaged kit. Really...just doing anything that will help in the moment!

Anyway...besides all of this...the treatment has been pretty much the same. I went to my second support group this week...which I'm still happy with my decision to join it. I also continue to be in love with my psychologist, who I try to see once a week. I'm also trying to start incorporating yoga in at least weekly. I'm still going to look into acupuncture...as I've heard great things from other survivors. These are my plans for gaining a little control over my mental/physical health.

So....I thought I'd leave you with a list of medications that I received on Tuesday(random, I know). I was thinking about it the other night when I was falling asleep...and I put a lot of foreign products into my body that day! This is a change for me...as I used to protest taking one pill for a headache. And...this is the minimum of what I had to take....I don't usually take extras..or prns...

Infusions:
Oxaliplatin (chemo)
5 fu (chemo)
leukovorin (part of chemo regimen)
magnesium (to help prevent peripheral neuropathies...not working)
calcium (same as mag)
dexamethasone (steroid..premed for chemo..helps with nausea)
aloxi (nausea med)

Injections:
Innohep SC (for clot)
Lupron IM (for menopause)

Pills:
Emend (nausea)
Asacol (12! for colitis...inflammation in colon)
Ativan (to chill me out..and nausea)

Okay...that's enough procrastination for now...(pills...here I come). Again, thank you to everyone for all of your support! I just feel like I can't say that enough!

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